Personal Experience with Survivor's CPTSD, Narcissistic Abuse, Anxiety & Sleep Disorders, Asperger's Syndrome, and Women's Wellness.
A Painful Syndrome
A few years ago, like the clumsy bumbler that I am, I failed to measure the distance between myself and a wing-backed chair into which I plopped myself while chatting on my cell phone. I banged the back of my head on the concave glass wall.
Whack! In an instant, a blinding, bright light with a train of glittering stars derailed inside my head. The pain was excruciating, and the soreness left me very tender for a few days. I thought nothing more of it other than a silly accident until just this last week when I had an unexpected and literal mind-blowing experience.
What Is Happening to Me?
Soon after my accident, while falling into a blissful sleep, I experienced a violent jolt. The only way I can describe it was like electrocution surging through my brain. The after effect was that of confusion and a numb, tingling heat that started from the left side of my temple and down the bottom of my cheek, surrounding the corner of my lips, and lasted for about a day.
Of course, I went to the ER and had a CT scan with reasonable results. No blood clot, aneurysm, or cracked skull. Everything seemed normal. Given my disbelief, the doctor suggested I see a neurologist since I had experienced what seemed to be a seizure.
Had I experienced a seizure or was this something else?
As an investigator, I took every path with my online research. Hitting my head is the most likely answer to this new condition I’m experiencing, maybe a Post-Concussion Syndrome, but then there is another possibility. I have had, for some time, chronic symptoms of Post Traumatic Stress Disorder (PTSD), and with this ailment, you can also experience bouts of insomnia, which is another potential link to Exploding Head Disorder. I can not pinpoint the reasoning behind my sudden onset. However, what I can pinpoint is that this condition happens right before falling to sleep. There is a surge, maybe two or three right before the big one, and then after-shocks that can last for a few hours.
What is Exploding Head Syndrome?
Exploding Head Syndrome (or EHS) is a condition that was first discussed by Robert Armstong Jones, a Welsh Physician who in 1920 described the ailment as an exploding sensation in the head.
For those individuals who suffer from EHS, they experience a loud noise, or an electrical pulse, which surges through their head. Some may experience a bright flash of light or visual static, which accompanies the initial sensation. Most times, the respondent may experience an out-of-body feeling where they undergo a surge which makes them feel an electrical separation of mind and body while others experience a rush of adrenaline, and heart-pounding palpitations, which border symptoms of a panic attack. While most report dealing with a sizeable amount of stress, there are some who develop insomnia from fear of the certain sensations which come with the disorder.
The American Sleep Association (ASA) regards the disorder as a non-dangerous ailment and explains further:
"Exploding Head Syndrome is thought to be highly connected with stress and extreme fatigue in most individuals. What causes the sensation in individuals is still unknown, though speculation of possible sources includes minor seizures affecting the temporal lobe or sudden shifts in the middle ear components."
Read More From Patientslounge
Exploding Head Syndrome or a Seizure?
All seizures have three stages:
- The first stage you may experience is a severe headache, dizziness, blurring vision, and a tingling sensation with a funny feeling in the stomach.
- The second stage may be a convulsion, erratic shaking, stiffness, blacking out, or falling.
- The third stage is feeling very weak with exhaustion and falling asleep.
One of the best ways to determine what you are experiencing would be to visit your doctor. Get a referral with a Neurologist and have a sleep study ordered. Exploding Head Syndrome is not life-threatening like seizures, it can seem debilitating when aligned with insomnia, causing the sufferer to need additional help, including visits to a psychotherapist.
Sleep Center Study: Nocturnal Seizures
You Are Not Alone
I’ve spent hours and hours researching case studies and personal stories over the internet, and I’ve come to the particular conclusion that I’m not crazy or delusional as I had once feared.
Hundreds of people, if not thousands, have come forward sharing their stories, rehashing my experience to various degrees. Their stories made me feel validated since my physician could not diagnose my problem and suggested that I visit an emotional therapist. Yes, the symptoms caused anxiety and some depression because of lack of sleep, but his implicit suggestion that I might have a mental health condition based on his inability to diagnose my problem somehow made me feel as if he thought I’d been making the whole scenario up. It’s no wonder that there are others out there, experiencing the same thing and refuse to get medical attention for fear of ridicule.
In closing, the good news for those who experience Exploding Head Syndrome is that in the last few years there’s more case studies and scientific and medical research on this challenging condition.
Interesting Personal Experience and a Possible Explanation On EHS
Frese, A., Summ, O. & Evers, S. 2014. Exploding Head Syndrome: Six New Cases and Review of the Literature, Cephalalgia
Brian A.Sharpless. December 2014. Volume 18, Issue 6, Pages 489–493 Exploding Head Syndrome, Sleep Medicine Reviews
This content is accurate and true to the best of the author’s knowledge and does not substitute for diagnosis, prognosis, treatment, prescription, and/or dietary advice from a licensed health professional. Drugs, supplements, and natural remedies may have dangerous side effects. If pregnant or nursing, consult with a qualified provider on an individual basis. Seek immediate help if you are experiencing a medical emergency.
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